- Poster presentation
- Open Access
Evolution of national and European policies in the field of rare diseases and their impact over the past five years
© Rodwell and Aymé; licensee BioMed Central Ltd. 2014
- Published: 11 November 2014
- Rare Disease
- National Plan
- European Policy
- National Alliance
- European Research Project
This work has been supported by the EUCERD Joint Action: Working for Rare Diseases (N°2011 22 01) financed by the European Commission within the European Union’s Second Programme of Community Action in the Field of Health.
- Commission Decision establishing a European Union Committee of Experts on Rare Diseases (2009/872/EC). 2009, (2009/872/EC) [http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:L:2009:315:0018:0021:EN:PDF]
- European Union Committee of Experts on Rare Diseases [http://www.eucerd.eu].
- Aymé S, European Union Committee of Experts on Rare Diseases: Report on the State of the Art of Rare Disease Activities in Europe. Edited by: C. Rodwell.July 2010, July 2011, July 2012, July 2013, July 2014, [http://www.eucerd.eu/?page_id=163#StateArt],
- Commission Expert Group on Rare Diseases of Experts on Rare Diseases [http://ec.europa.eu/health/rare_diseases/expert_group/index_en.htm].
- E-Rare [http://www.erare.eu].
- International Rare Diseases Research Consortium [http://www.irdirc.org].
- Orphanet [http://www.orpha.net].
- Eurordis, European Organisation for Rare Diseases [http://www.eurordis.org].
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