Table 6 The topics lacking for and/or desired to have more information about
From: Phenylketonuria from the perspectives of patients in Türkiye
Pediatric | Adolescent | Adult | ||||
|---|---|---|---|---|---|---|
N | n (%) | N | n (%) | N | n (%) | |
Novel therapies | 66 | 50 (75.8) | 44 | 32 (72.7) | 72 | 50 (69.4) |
New dietary opportunities (such as recipes) | 66 | 46 (69.7) | 44 | 31 (70.5) | 72 | 51 (70.8) |
More frequent contact with doctor | 66 | 40 (60.6) | 44 | 35 (79.5) | 72 | 35 (48.6) |
Food contents | 66 | 39 (59.1) | 44 | 29 (65.9) | 72 | 43 (59.7) |
Campaigns for disease awareness | 66 | 38 (57.6) | 44 | 25 (56.8) | 72 | 31 (43.1) |
Group activities for patients and patient relatives | 66 | 37 (56.1) | 44 | 26 (59.1) | 72 | 39 (54.2) |
Patient societies | 66 | 35 (53.0) | 44 | 26 (59.1) | 72 | 29 (40.3) |
Other | 66 | 6 (9.1) | 44 | 3 (6.8) | 72 | 4 (5.6) |