Table 5 Unfavorable situations/symptoms that patients have experienced
From: Phenylketonuria from the perspectives of patients in Türkiye
Pediatric | Adolescent | Adult | ||||
|---|---|---|---|---|---|---|
N | n (%) | N | n (%) | N | n (%) | |
Unfavorable situations/symptoms that the patient have experienced * | 66 | 44 | 72 | |||
None | 21 (31.8) | 4 (9.1) | 13 (18.1) | |||
Angry/irritable mood | 27 (40.9) | 26 (59.1) | 38 (52.8) | |||
Sad mood | 14 (21.2) | 13 (29.5) | 24 (33.3) | |||
Rebellious mood | 12 (18.2) | 9 (20.5) | 14 (19.4) | |||
Anxious mood | 11 (16.7) | 9 (20.5) | 20 (27.8) | |||
Indecisive mood | 10 (15.2) | 9 (20.5) | 23 (31.9) | |||
Laziness or feeling of laziness | 11 (16.7) | 14 (31.8) | 25 (34.7) | |||
Feeling of tiredness | 7 (10.6) | 15 (34.1) | 30 (41.7) | |||
Failure to concentrate / difficulty in focusing | 18 (27.3) | 22 (50.0) | 27 (37.5) | |||
Difficulty in understanding the subjects in class/at work/daily life | 12 (18.2) | 18 (40.9) | 20 (27.8) | |||
Difficulty in communicating with others | 8 (12.1) | 11 (25.0) | 12 (16.7) | |||
Slow reaction | 4 (6.1) | 6 (13.6) | 8 (11.1) | |||
Feeling like in a smokescreen | 2 (3.0) | 5 (11.4) | 8 (11.1) | |||
Headache | 4 (6.1) | 8 (18.2) | 16 (22.2) | |||
Vision impairment | 4 (6.1) | 6 (13.6) | 11 (15.3) | |||
Gastric complaints | 4 (6.1) | 5 (11.4) | 12 (16.7) | |||
Other | 3 (4.5) | 6 (13.6) | 3 (4.2) | |||
Presence of comorbidity according to Charlson Comorbidity index | 66 | 1 (1.5) | 44 | 4 (9.1) | 72 | 8 (11.1) |
Those who stated that there are things they want but could not do because of illness | 66 | 34 (51.5) | 44 | 23 (52.3) | 71 | 37 (52.1) |
Those who consider their illness as an obstacle for social life | 66 | 28 (42.4) | 44 | 14 (31.8) | 71 | 20 (28.2) |