Table 3 The problems experienced at the metabolism centers and the level of patient satisfaction
From: Phenylketonuria from the perspectives of patients in Türkiye
Pediatric | Adolescent | Adult | ||||
|---|---|---|---|---|---|---|
N | n (%) | N | n (%) | N | n (%) | |
Those who are still visiting the same center where they have been diagnosed with PKU | 66 | 61 (92.4) | 44 | 31 (70.5) | 72 | 65 (90.3) |
Those who would like to change the center or the specialist they visit for control if they can | 66 | 32 (48.5) | 43 | 19 (44.2) | 71 | 21 (29.6) |
Those who have trouble in accessing the metabolism center | 66 | 39 (59.1) | 44 | 25 (56.8) | 72 | 24 (33.3) |
Reasons for trouble in accessing the metabolism center* | 66 | 44 | 72 | |||
It is difficult to make an appointment | 27 (40.9) | 16 (36.4) | 16 (22.2) | |||
Very long waiting time for examination /control | 24 (36.4) | 15 (34.1) | 20 (27.8) | |||
Metabolism center is located in another city | 21 (31.8) | 10 (22.7) | 4 (5.6) | |||
Economic hardship | 21 (31.8) | 16 (36.4) | 10 (13.9) | |||
Difficulty in accommodation because the center is located in another city | 15 (22.7) | 5 (11.4) | 2 (2.8) | |||
Other | 4 (6.1) | 5 (11.4) | 6 (8.3) | |||
Level of satisfaction from the metabolism center providing service | 66 | 44 | 71 | |||
Very satisfied | 8 (12.1) | 10 (22.7) | 19 (26.8) | |||
Satisfied | 36 (54.5) | 19 (43.2) | 44 (62.0) | |||
Dissatisfied | 22 (33.3) | 15 (34.1) | 8 (11.3) | |||
Level of satisfaction from the metabolism specialist providing service | 66 | 44 | 71 | |||
Very satisfied | 10 (15.2) | 8 (18.2) | 21 (29.6) | |||
Satisfied | 45 (68.2) | 27 (61.4) | 47 (66.2) | |||
Dissatisfied | 11 (16.7) | 9 (20.5) | 3 (4.2) |