Table 1 General characteristics of PKU patients
From: Phenylketonuria from the perspectives of patients in Türkiye
Patient Group | ||||||
|---|---|---|---|---|---|---|
Pediatric | Adolescent | Adult | ||||
N | Median (Q1-Q3) (Min.-Max.) | N | Median (Q1-Q3) (Min.-Max.) | N | Median (Q1-Q3) (Min.-Max.) | |
Age, year, | 66 | 8 (6–10) (2–12) | 44 | 14 (13–17) (13–18) | 72 | 23 (22–26) (20–47) |
Sex | 66 | n (%) | 44 | n (%) | 72 | n (%) |
Female | 34 (51.5) | 22 (50.0) | 39 (54.2) | |||
Male | 32 (48.5) | 22 (50.0) | 33 (45.8) | |||
Mean household monthly income, € | 65 | n (%) | 41 | n (%) | 60 | n (%) |
< 312.5 | 23 (35.4) | 12 (29.3) | 17 (28.3) | |||
312.5–625 | 33 (50.8) | 20 (48.8) | 27 (45.0) | |||
> 625–1250 | 6 (9.2) | 8 (19.5) | 14 (23.3) | |||
> 1250 | 3 (4.6) | 1 (2.4) | 2 (3.3) | |||
Patient’s caregiver * | 66 | n (%) | 44 | n (%) | 72 | n (%) |
Mother | 65 (98.5) | 42 (95.5) | 47 (65.3) | |||
Father | 13 (19.7) | 14 (31.8) | 11 (15.3) | |||
Sibling | 2 (3.0) | 3 (6.8) | 6 (8.3) | |||
None (i.e. self-care) | - | 1 (2.3) | 34 (47.2) | |||
Other (grandmother/spouse) | 5 (7.6) | 1 (2.35) | 5 (6.9) | |||