From: RegistrAME: the Spanish self-reported patient registry of spinal muscular atrophy
Variable | AGE: Years | |||||
---|---|---|---|---|---|---|
< 2 | 2–6 | 7–10 | 11–15 | > 15 | ||
N = 11 | N = 67 | N = 37 | N = 32 | N = 148 | ||
n (%) | n (%) | n (%) | n (%) | n (%) | ||
Hand Motor Function | No useful function with my hands | 0 (0%) | 1 (1.49%) | 4 (10.81%) | 1 (3.12%) | 12 (8.11%) |
I can’t bring my hands to my mouth, but I have useful function in my hands | 0 (0%) | 0 (0%) | 1 (2.7%) | 3 (9.38%) | 22 (14.86%) | |
I can bring my hands up to my mouth | 5 (45.45%) | 5 (7.46%) | 7 (18.92%) | 15 (46.88%) | 71 (47.97%) | |
I can raise my arms above my head | 6 (54.55%) | 61 (91.04%) | 25 (67.57%) | 13 (40.62%) | 43 (29.05%) | |
Rolling capability | I cannot turn | 5 (45.45%) | 2 (2.99%) | 5 (13.51%) | 10 (31.25%) | 80 (54.05%) |
I can only partially turn | 3 (27.27%) | 8 (11.94%) | 7 (18.92%) | 12 (37.5%) | 29 (19.59%) | |
I can turn completely | 3 (27.27%) | 57 (85.07%) | 25 (67.57%) | 10 (31.25%) | 39 (26.35%) |