Barriers to gene therapy, understanding the concerns people with haemophilia have: an exigency sub-study

Table 4 Coding diagram

Primary codes	Secondary codes	Themes
Changing goalposts	Concerns about the processes of gene therapy	Expectations
Immunosuppression
COVID-19
Increased burden
Employment concerns
Identity
Increased medicalisation
Reduced choices
	Uncertainty about the results of gene therapy	Outcomes
Increased bureaucracy
Cure
Durability
Benefits of
Factor levels
Not just gene therapy
Anxiety
	Access to treatment	Access
Infected blood
Inhibitor
Cost
Gatekeeping
Clinical trials
Treatment centre
	A lack of understanding of gene therapy	Information
Discussions about GT
First Introduction to GT
Understanding of GT
Not enough information
HCP don't understand it
Unwillingness/Inability to discuss
"I don't understand it"
Not enough information
Too complicated

ISSN: 1750-1172