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Table 1 Demographics of 873 participants with PWS and their families

From: The Prader-Willi syndrome Profile: validation of a new measure of behavioral and emotional problems in Prader-Willi syndrome

Demographics

M (SD) or %

Age (years)

18.00 (10.81)

Gender

47.8% M, 52.2% F

Body Mass Index

29.05 (11.27)

Race/Ethnicity:

 

White

78.00%

Multi-Racial, Other

7.40%

Latino, Hispanic

5.60%

Asian

4.00%

Black

2.06%

Prefer to not answer

2.98%

Genetic Subtypes:

 

Deletion

52.7%

mUPD

33.2%

Imprinting Defect

3.2%

Translocation

2.0%

Unknown

8.9%

Living Situation:

 

Parents

84.6%

Group Home, Residential Care

10.8%

Supportive Independent Living

4.6%

Annual Parental Income:

 

< $29,000

12.1%

$30,000 to $49,000

13.3%

$50,000 to $74,000

15.7%

$75,000 to $99,000

16.6%

$100,000 to > $200,00

32.1%

Decline to provide

10.1%

Parental Education:

Mother

Father

High School

10.9%

19.9%

Vocational Training

6.3%

9.6%

Attended College

14.4%

11.5%

Graduated College

44.1%

36.8%

Professional Training

24.3%

22.2%