Table 1 Sociodemographic characteristics of the participants
Sociodemographic characteristics | Person living with CDG (N = 23) | Family caregiver (N = 151) | ||
|---|---|---|---|---|
n | % | n | % | |
Sex | ||||
Male | 7 | 30.4 | 16 | 10.6 |
Female | 16 | 69.6 | 135 | 89.4 |
Age (years) | ||||
25–34 | 7 | 30.4 | 28 | 18.5 |
35–44 | 6 | 26.1 | 68 | 45.0 |
45–54 | 7 | 30.4 | 37 | 24.5 |
55–65 | 1 | 4.3 | 14 | 9.3 |
above 65 | 2 | 8.7 | 4 | 2.7 |
Marital status | ||||
Single | 7 | 30.4 | 6 | 4.0 |
Married/Live-in partnership | 13 | 56.5 | 132 | 87.4 |
In a relationship | 1 | 4.3 | 2 | 1.3 |
Divorced/Separated | 2 | 8.7 | 11 | 7.3 |
Educational degree | ||||
Less than high school diploma | 2 | 8.7 | 3 | 2.0 |
High school diploma or equivalent degree | 11 | 47.8 | 28 | 18.5 |
Higher academic degree | 10 | 43.4 | 118 | 78.2 |
Other | 0 | 0 | 2 | 1.3 |
Occupation | ||||
Employed/Self-employed | 9 | 39.1 | 102 | 67.5 |
Unemployed and able to work | 2 | 8.7 | 3 | 2.0 |
Unemployed and not able to work (disability, long-term illness) | 5 | 21.7 | 0 | 0.0 |
Homemaker/Houseworker/Full caregiver | 1 | 4.3 | 32 | 21.2 |
Retired | 2 | 8.7 | 8 | 5.3 |
Other | 4 | 17.3 | 6 | 4.0 |