Table 1 Patients and disease-related factors table
From: Diagnostic journey for individuals with fibrous dysplasia / McCune albright syndrome (FD/MAS)
Total (N = 165) | Included (N = 51) | Excluded (N = 114) | ||
|---|---|---|---|---|
Age (years) | ||||
Median [Interquartile range (IQR)] | 44.0 [32.0, 56.0] | 51.0 [34.5, 57.5] | 41.5 [30.2, 56] | |
Range Gender | ||||
Female | 118 (71.5%) | 36 (70.6%) | 82 (71.9%) | |
Type of FD/MAS | ||||
Cranio-facial | 14 (8.5%) | 11 (21.6%) | 3 (2.6%) | |
McCune Albright Syndrome | 22 (13.3%) | 12 (23.5%) | 10 (8.8%) | |
Monostotic | 27 (16.4%) | 11 (21.6%) | 16 (14.0%) | |
Polyostotic | 23 (13.9%) | 11 (21.6%) | 12 (10.5%) | |
Not known | 79 (47.9%) | 6 (11.8%) | 73 (64%) | |
First symptoms | ||||
Non pain | 27 (16.4%) | 21 (41.2%) | 6 (5.3%) | |
Pain | 35 (21.2%) | 30 (58.8%) | 5 (4.4%) | |
Missing | 104 (63.0%) | 0 (0%) | 103 (90.4%) | |
Other diagnosis | ||||
None given | 131(79.4%) | 27 (52.9%) | 104 (91.2%) | |
Cancer | 14 (8.5%) | 10 (19.6%) | 4 (3.5%) | |
Non cancer | 20 (12.1%) | 14 (27.5%) | 6 (5.3%) | |