Table 1 Respondent demographics. *demographics were only available for 86 respondents
Respondent demographics | N = 86* |
|---|---|
Provider specialty area (may select more than one) | |
 Pulmonologist | 34 (39.5%) |
 Neurologist | 28 (32.6%) |
 MFM | 7 (8.10%) |
 OBGYN | 1 (1.20%) |
 Genetics/GENETIC COUNSELING | 7 (8.10%) |
 Nephrology | 2 (2.30%) |
 Nursing | 3 (3.50%) |
 Oncology | 2 (2.30%) |
 Psychology/psychiatry | 3 (3.50%) |
 Other (cardiology) | 2 (2.30%) |
Number of TSC patients seen yearly (select one) | |
 Never seen a patient with TSC | 2 (2.30%) |
 0–1 | 9 (10.5%) |
 2–10 | 27 (31.4%) |
 11–30 | 13 (15.1%) |
 > 30 | 35 (40.7%) |
Patient population seen (may select more than one) | |
 Fetal/pregnancy care | 30 (34.9%) |
 Pediatric (age 0–18) | 38 (44.2%) |
 Young adult (age 19–25) | 55 (64.0%) |
 Adult (age > 25) | 58 (67.4%) |
Practice in a TSC clinic (select one) | |
 Yes | 53 (61.6%) |
 No | 33 (38.4%) |
Years in practice (select one) | |
 0–5 | 12 (14.0%) |
 6–10 | 20 (20.3%) |
 11–15 | 12 (14.0%) |
 16–20 | 14 (16.3%) |
 21 +  | 28 (32.6%) |
Gender identify (select one) | |
 Male | 40 (46.5%) |
 Female | 43 (50.0%) |
 Nonbinary | 1 (1.20%) |
 Prefer not to answer | 2 (2.30%) |
Race/ethnicity (may select more than one) | |
 Asian | 18 (20.9%) |
 Black or African American | 1 (1.20%) |
 Hispanic or Latino | 2 (2.30%) |
 White | 59 (68.6%) |
 Prefer not to answer | 6 (7.00%) |
 Other | 2 (2.30%) |
Primary country of practice (select one) | |
 United States | 71 (82.6%) |
 Other | 15 (17.4%) |