Table 1 Patient characteristics (patients with self-reported outcomes and those with caregiver-reported outcomes)
Interviews | Pilot questionnaire | Main validation | |||
|---|---|---|---|---|---|
Reported by | Patients | Caregivers | Households | Patients | Caregivers |
N | 36 | 18 | 91 | 242 | 56 |
Age (mean [range]) | 53 [18, 74] | 56 [18, 74] | 52 [19, 79] | 56 [21, 81] | 50 [17, 85] |
Sex (N (%)) | |||||
Female | 15 (42) | 8 (44) | 40 (44) | 129 (53) | 28 (50) |
Male | 21 (58) | 10 (56) | 51 (56) | 111 (46) | 28 (50) |
Diverse | 0 (0) | 0 (0) | 0 (0) | 2 (1) | 0 (0) |
SPRS (mean [range]) | 19 [4, 42] | 22 [8, 42] | 19 [4, 39] | – | – |