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Table 1 Scoping review questions

From: The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review

Scoping review questions

Population (P)

Concept (C)

Context (C)

1. What have been the changes of the provision of healthcare services for the care of people living with RNDs in Europe during COVID-19 pandemic?

People living with rare neurological diseases and neurometabolic disorders in Europe

Organization of healthcare services provision

COVID-19 pandemic

2. What measures (like telemedicine and digital e-tools, etc.) have been implemented for the mitigation of disruption or discontinuity of care for people with RNDs in Europe during COVID-19 pandemic?

People with RNDs and neurometabolic disorders in Europe

Telemedicine and digital e-tools such as Electronic Health Records (HER), etc.

Disruption or discontinuity of care during COVID-19 pandemic