Translating patient needs into medical device development: co-design of a photoprotection visor for Xeroderma Pigmentosum using qualitative interviews

Table 1 Demographic details of participants

Participants	Patients aged 16 and above (Adults)	Patients aged 11–15 (Young people)	Patients aged 5–10 (Children)	Parent of patient aged 16 and above	Parent of patient aged 5–15 (carer)	Parent of Adult patient who needs complete care
Number of participants	16	3	5	9	11	1
Gender	13 Males 3 Females	1 Males 2 Females	3 Males 2 Females	3 Males 6 Females	5 Males 6 Females	Female
Genotype-Phenotype Code	XPA-1, 2 XPA-1 XPA-3 XPC-2 XPC-2 XPC-2 XPC-2 XPC-3 XPC-3 XPC-3 XPC-3 XPV-3 XPV-2 XPD-1,2 XPE-2 XPF-1	XPC-1 XPC-3 XPC-3	XPA-3 XPC-3 XPC-3 XPC-3 XPD-3
Number of participants who wear a visor	Yes 8 No 8	Yes 3	Yes 5

Ethnicity: Twelve (patient) participants were White Caucasian and 12 were either Asian, Arab, or Other
Phenotype Code: 1- Diagnosed with a neurological condition, 2- Diagnosed with skin cancers, 3- Neither neurological condition or skin cancers diagnosed

ISSN: 1750-1172