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Fig. 1 | Orphanet Journal of Rare Diseases

Fig. 1

From: Educational needs of patients, families, and healthcare professionals to support the patient journey in haemophilia gene therapy in the UK

Fig. 1

Unmet needs throughout the patient journey, potential next steps, and educational requirements for PWH. A Current unmet needs throughout the gene therapy for haemophilia journey and potential starting points regarding education, psychological support, and guidance. Time periods are indicated by a light grey background; unmet needs are applicable to all time periods across which they span. B Summary of key educational topics required for PWH. Education for PWH on these topics should begin as soon as possible pre-infusion, ideally in childhood

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172