Table 1 Survey sample characteristics
Characteristic | UK | Italy | Germany |
|---|---|---|---|
Respondent type | |||
Patient | 234 (85.7%) | 131 (75.7%) | 90 (89.1%) |
On behalf of the patient | 39 (14.3%) | 42 (24.3%) | 11 (10.9%) |
Age (years) | |||
16–29 | 12 (4.4%) | 22 (12.72%) | 12 (11.9%) |
30–59 | 106 (39.3%) | 115 (66.5%) | 60 (59.4%) |
60–79 | 140 (51.9%) | 35 (20.2%) | 29 (28.7%) |
80+ | 12 (4.4%) | 1 (0.6%) | 0 (0%) |
Sex | |||
Female | 142 (52.6%) | 93 (53.8%) | 48 (47.5%) |
Male | 128 (47.4%) | 80 (46.2%) | 53 (52.5%) |
Diagnosis | |||
FRDA | 27 (10.1%) | 56 (35.2%) | 14 (14.9%) |
Inherited CA | 78 (29.2%) | 42 (26.4%) | 52 (55.3%) |
Idiopathic CA | 114 (42.7%) | 19 (12%) | |
Other types | 38 (14.2%) | 27 (17%) | 15 (16%) |
Not known | 10 (3.8%) | 15 (9.4%) | 13 (13.8%) |
Attendance at SAC | |||
Never been | 128 (51.6%) | 27 (19.4%) | 23 (23.4%) |
Currently going | 72 (29%) | 82 (59%) | 48 (57.1%) |
Used to go | 48 (19.4%) | 30 (21.6%) | 13 (15.5%) |