Table 1 Characteristics of 1469 adults with NF1 and 11,991 population comparisons
Adults with NF1 (N = 1469) | Population comparisons (N = 11,991) | |
|---|---|---|
No. (%) | No. (%) | |
Sex | ||
Men | 706 (48) | 5764 (48) |
Women | 763 (52) | 6227 (52) |
Birth year | ||
1929–1940 | 203 (14) | 1743 (14) |
1941–1950 | 271 (18) | 1398 (20) |
1951–1960 | 250 (17) | 2164 (18) |
1961–1970 | 290 (20) | 2452 (20) |
1971–1980 | 273 (19) | 2044 (17) |
1981–1988 | 182 (12) | 1190 (10) |
Median age in years at end of follow-up (range) | 53.5 (30.2–89.1) | 57.7 (30.2–89.1) |
Median age in years at first hospitalization for or with NF1 (range) | 35.3 (0.0–79.3) | |
Somatic hospital contacts (< 30 years) | ||
Cancer | 74 (7) | 34 (0) |
Benign tumors | 212 (21) | 259 (3) |
Neurologic disease | 214 (21) | 727 (9) |
Gastrointestinal disease | 211 (21) | 1131 (14) |
Diseases of bones, joints, and soft tissue | 226 (23) | 1113 (14) |
Psychiatric hospital contacts (< 30 years) | ||
Any | 76 (8) | 406 (5) |
Highest educational level (< 30 years) | ||
Short | 664 (45) | 3587 (30) |
Medium | 513 (35) | 5458 (46) |
Long | 201 (14) | 2460 (21) |
Unknown | 91 (6) | 486 (4) |