1 | If you got the chance to change 3 things in your journey till your mature age, what would you’ve changed? |
2 | Will I be able to live normal like other kids and be strong to do anything like other normal kids? |
3 | Will I be on medication throughout my lifetime even if I oft for bone marrow transplantations |
4 | How does it affect relationships? |
5 | When I’m older can I still enjoy fun activities with my friends? I want to get piercing but I’m always told not to and I feel like I’m missing out |
6 | Does the sickle cell disease go at a certain age or not? |
7 | What are the health challenges on older people in these different areas: Employment, sex, hospitalisation, vacation by air? |