Skip to main content

Table 8 Freely available data on the website https://malattierare.toscana.it/

From: The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases

Records included in the Rare Disease Registry of Tuscany (RTMR)

Total cases by disease group

Total cases by disease

Total cases by gender

Total cases by age group

Total cases by paediatric age group

Total cases by patient's area of residence

Total cases by local health district

Total cases by Institution

Total cases by Presidium