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Table 11 Congenital cardiopathies clinical sub-network

From: The Tuscany Regional Network for rare diseases: from European Reference Networks’ experience to registry based organisation and management model for rare diseases

Clinical subnetwork

Congenital cardiopathies (part of CCMR_CARDIAC diseases)

Head of clinical subnetwork

Name of responsible medical specialist (Specialised Reference Institution)

Sub-network's related diseases

RNG141-Criss-cross heart

RNG141-Ebstein, anomaly of

RNG141-Hypoplasic left heart syndrome

RNG141-Severe and invalidant congenital malformation syndromes of the heart and large vessels

  1. CCMR Rare Disease Coordination Centre (Centro di Coordinamento Malattia Rara in Italian)
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172