Delineating family needs in the transition from hospital to home for children with medical complexity: part 1, a meta-aggregation of qualitative studies

Table 1 ConQual summary of findings

Synthesized finding	Type of research	Dependability	Credibility	ConQual score^#
1. Parental empowerment: shifting from care recipient to caregiver	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
2. Coordination of care	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
3. Communication and information	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
4. Training skills	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
5. Preparation for discharge	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
6. Access to resources and support system	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
7. Emotional experiences: fatigue, fear, isolation, and guilt	Qualitative studies	Downgrade 2 levels**	Downgrade 1 level^¥	Very low
8. Parent-professional relationship	Qualitative studies	Downgrade 1 level*	Downgrade 1 level^¥	Low
9. Changing perspective: finding new routines and practices	Qualitative studies	Downgrade 2 levels**	Downgrade 1 level^¥	Very low

^#ConQual score: Score ranging from highmderate–low–very low, depending on a level of dependability and credibility
^*Downgraded one level due to mixed dependability scores (high and moderate) of primary studies. Common dependability issues across the included studies were for example no statement locating the researcher and/or no acknowledgement of their influence on the research
^**Downgraded two levels due to mixed dependability scores (high, moderate, and low) of primary studies
^¥Downgraded one level due to a mix of unequivocal and credible findings

ISSN: 1750-1172