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Table 1 The issues emphasized in the PIPP-RDs

From: Parental Intervention Program for Preschool children with Rare Diseases – a mixed methods evaluation of parents’ experiences and utility

The issues emphasized in the PIPP-RDs:

- Expectations and opportunities for starting school

- Educational adaptation

- Adapted and inclusive Physical Education

- Strategies for informing and communication with others about their child’s disease

- Collaboration between school and home

- Embracing differences

- Navigating challenges of having a child with a RD

- Practical adaptations for the children’s needs

- Perspectives on enhancing the children’s transition to school

Throughout the program, parents work on developing a schedule plan for how they will facilitate the transition process for their child, from kindergarten to school.