Table 3 FCS symptoms and impacts scale summary responses (N = 17)
Question | Median (IQR) | N (%) | |||||
|---|---|---|---|---|---|---|---|
Symptoms (0 = no to 10 = worst possible) | 0 | 1–2 | 3–4 | 5–6 | 7–8 | 9–10 | |
Abdominal pain | 0.0 (0–5) | 10 (58.8) | 2 (11.8) | 0 (0) | 3 (17.7) | 1 (5.9) | 1 (5.9) |
Physical fatigue | 5.0 (1–6) | 4 (23.5) | 3 (17.7) | 1 (5.9) | 6 (35.3) | 2 (11.8) | 1 (5.9) |
Difficulty thinking | 2.0 (0–5) | 6 (35.3) | 5 (29.4) | 1 (5.9) | 4 (23.5) | 0 (0) | 1 (5.9) |
Diarrhea | 0.0 (0–2) | 12 (70.6) | 2 (11.8) | 2 (11.8) | 1 (5.9) | 0 (0) | 0 (0) |
Impacts (0 = never, 1 = rarely, 2 = sometimes, 3 = often, 4 = always) | 0 | 1 | 2 | 3 | 4 | – | |
|---|---|---|---|---|---|---|---|
Worry about pancreatitis attack | 3.0 (3–4) | 0 (0) | 2 (11.8) | 2 (11.8) | 5 (29.4) | 8 (47.1) | – |
Avoid making plans | 2.0 (1–3) | 3 (17.7) | 4 (23.5) | 5 (29.4) | 3 (17.7) | 2 (11.8) | – |
Feel anxious in social situations involving food | 3.0 (2–4) | 2 (11.8) | 0 (0) | 3 (17.7) | 5 (29.4) | 7 (41.2) | – |
Avoid social situations involving food | 3.0 (2–3) | 2 (11.8) | 1 (5.9) | 4 (23.5) | 6 (35.3) | 4 (23.5) | – |
Worry about eating food prepared by someone else | 3.0 (2–4) | 0 (0) | 2 (11.8) | 6 (35.3) | 4 (23.5) | 5 (29.4) | – |
Worry about going over dietary fat limit | 3.0 (3–4) | 0 (0) | 2 (11.8) | 2 (11.8) | 6 (35.3) | 7 (41.2) | – |
Worry about future health | 4.0 (3–4) | 0 (0) | 0 (0) | 1 (5.9) | 4 (23.5) | 12 (70.1) | – |
Worry about being a burden | 3.0 (2–4) | 0 (0) | 1 (5.9) | 6 (35.3) | 2 (11.8) | 8 (47.1) | – |
Less physically active | 2.0 (0–4) | 6 (35.3) | 2 (11.8) | 1 (5.9) | 2 (11.8) | 6 (35.3) | – |
Feel sad or depressed | 2.0 (1–3) | 4 (23.5) | 1 (5.9) | 6 (35.3) | 2 (11.8) | 4 (23.5) | – |
Feel judged by others | 1.0 (0–3) | 8 (47.1) | 2 (11.8) | 2 (11.8) | 3 (17.7) | 2 (11.8) | – |
Worry about finances | 2.0 (0–4) | 5 (29.4) | 2 (11.8) | 4 (23.5) | 0 (0) | 6 (35.3) | – |
Less productive | 2.0 (0–3) | 6 (35.3) | 2 (11.8) | 3 (17.7) | 2 (11.8) | 4 (23.5) | – |