Table 1 Socio-demographic characteristics (N = 17)
Characteristic | Median (IQR) |
|---|---|
Current age (years) | 48.0 (45–56) |
Age when noticed first symptoms (years) | 7.0 (4–13) |
Age at diagnosis (years) | 25.0 (12–40) |
Sex | N (%) |
Male | 2 (12) |
Female | 15 (88) |
Ethnic background | |
White | 13 (76.5) |
Asian or Asian British | 4 (23.5) |
Education | |
No formal qualifications | 1 (5.8) |
ONC/BTEC | 2 (11.8) |
O level/GSCE or equivalent | 2 (11.8) |
A Level or Higher | 2 (11.8) |
Higher education below degree level | 4 (23.5) |
University degree or higher | 5 (29.4) |
Other | 1 (5.8) |
Employment | |
Employed full-time | 5 (29.4) |
Employed part-time | 4 (23.5) |
Self employed | 2 (11.8) |
Full-time homemaker/caregiver | 1 (5.8) |
Retired | 2 (11.8) |
Seeking work/Unemployed | 2 (11.8) |
Long term sick leave | 1 (5.8) |