Table 5 Overall feedback on symptoms management (a) and care received being adapted to people’s needs (b)
From: Patient pathways for rare diseases in Europe: ataxia as an example
Country | UK | Germany | Italy | |||
|---|---|---|---|---|---|---|
(a) | ||||||
Feedback on symptom management | Number of respondents in NO to SAC | Number of respondents in YES to SAC | Number of respondents in NO to SAC | Number of respondents in YES to SAC | Number of respondents in NO to SAC | Number of respondents in YES to SAC |
Positive N (%) | 58 (55%) | 48 (77%) *** | 15 (88%) | 31 (94%) | 10 (62.5%) | 46 (74%) |
Negative N (%) | 47 (45%) | 14 (23%)*** | 2 (12%) | 2 (6%) | 6 (37.5%) | 16 (26%) |
Total respondents | 105 (100%) | 62 (100%) | 17 (100%) | 33 (100%) | 16 (100%) | 62 (100%) |
(b) | ||||||
Feedback on care received | Number of respondents in NO to SAC | Number of respondents in YES to SAC | Number of respondents in NO to SAC | Number of respondents in YES to SAC | Number of respondents in NO to SAC | Number of respondents in YES to SAC |
Positive N (%) | 56 (52%) | 48 (75%)*** | 15 (83%) | 30 (85%) | 10 (53%) | 41 (66%) |
Negative N (%) | 51 (48%) | 16 (25%)*** | 3 (17%) | 5 (15%) | 9 (47%) | 21 (34%) |
Total respondents | 107 (100%) | 64 (100%) | 18 (100%) | 35 (100%) | 19 (100%) | 62 (100%) |