Cost of illness in inclusion body myositis: results from a cross-sectional study in Germany

Table 2 PROMs and PREMs: physical functioning, comorbidities and satisfaction with healthcare

	Median (IQR) or n (%)	Possible range
sIFA total (n = 81)	74 (42–88)	0–110
Stand from ordinary chair	8 (4–10)	0–10
Get up from the floor	10 (8–10)	0–10
Get on and off toilet	8 (5–10)	0–10
Walk on a flat, firm surface	5 (3–8)	0–10
Walk outdoors	8 (5–10)	0–10
Go up or down 5 steps	9 (4–10)	0–10
Step up and down curbs	8 (4–10)	0–10
Swallow liquids	1 (0–3)	0–10
Swallow solids	2 (0–5)	0–10
Carry a 5-pound object	6 (3–10)	0–10
Grip and use small objects	6 (3–9)	0–10
SCQ-D (n = 82)	5 (2–8)	0–39
Problem	2.5 (1–4)	0–13
Treatment	1.5 (1–3)	0–13
Limited activities	0 (0–1)	0–13
Satisfaction with healthcare (n = 81)
Very	22 (27.2)
Quite a bit	34 (42.0)
Moderately	18 (22.2)
A little	5 (6.2)
Not	2 (2.5)
Satisfaction with health insurance (n = 82)
Very	23 (28.0)
Quite a bit	37 (45.1)
Moderately	10 (12.2)
A little	10 (12.2)
Not	2 (2.49)

IQR interquartile range, sIFA sIBM physical functioning assessment, SCQ-D German self-administered comorbidity questionnaire. Percentages may not total 100 due to rounding

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