Table 2 Quantitative data and characteristics of reviewed registries
From: Guidance to develop a multidisciplinary, international, pediatric registry: a systematic review
Anda | 2017 | 2014 | The Georgian birth registry | National | Georgia | 53,236 |
|---|---|---|---|---|---|---|
Anda | 2008 | 2006 | Murmansk County Birth Registry (MCBR) | Regional | Murmansk | 17,031 |
Blenstrup | 2011 | 1993, 1980, 1994 | FTDB, RLIA and IVFR | National | Denmark | NA |
De Antonio | 2019 | 2008 | DM-Scope registry | National | France | 2970 |
Deakyne-Davies | 2018 | 2016 | The PECARN registry | National | USA | 894,503 |
Ebner | 2015 | NA | The ARegPKD registry | International | Germany, Turkey | NA |
Ericson | 1977 | 1973 | RCM Registry and MBRS database | National | Sweden | 1623 |
Gauvrit | 2020 | 2009 | The French Cochlear Implant Registry | National | France | 5051 |
Gissler | 2000 | 1995 | The Finnish MBR | National | Finland | 60,254 |
Gissler | 1995 | 1991 | The Finnish MBR | National | Finland | 64,986 |
Hammil | 2007 | 2008 | National ICD register | National | USA | NA |
Hassan | 2017 | 2015 | No name | National | Palestina | 34,482 |
Kamper-Jorgenson | 2007 | 2004 | Childcare database | National | Denmark | 1,110,973 |
Knox | 1984 | 1962 | National scheme and Birminghame scheme | Both regional and National | UK | NA |
Lazem | 2022 | NA | The Iranian HUS Registry | National | Iran | NA |
Mallon | 2021 | 2016 | The HBR GFOAP Registry | International | France, Burkina Faso, Ivory Coast, Senegal, DRC, Mali, Madagascar, Morocco, Cameroon, Tunisia, Togo | 3349 |
Marazita | 1992 | 1986 | The VaCARES registry | Regional | Virginia state | 10,034 |
Minassian | 2019 | 2018 | the pregnancy register | National | The UK | 5,800,000 |
Nembhard | 2016 | 1980 | The WARDA registry | Regional | Western Australia | 30,000 |
Prince | 2008 | 2008 | The ABC-register | National | The Netherlands | 161 |
Seidlin | 2017 | 2012 | The NF registry | International | USA and 72 other Nationalities | 4680 |
Stiller | 1995 | 1975 | The National Registry of Childhood Tumours | National | The UK | 50,000 |
Druschel | 2001 | 1982 | Congenital Malformations Registry (CMR) | Regional | USA | NA |
Shahian | 2013 | 1989 | the STS Congenital Heart Surgery Database | National | USA | NA |