Table 3 Study methodologies employed in the 115 selected articles

Quantitative methodology

89

(77.4)

 Questionnaire

80

(69.6)

 Discrete choice experiments

4

(3.5)

 36-Item Short-Form Health Survey (SF-36)

3

(2.6)

 36-Item Short-Form Health Survey (SF-36) + Acceptance of Illness Scale (AIS)

1

(0.9)

 Parental Needs Scale for RD (PNS-RD)

1

(0.9)

Mixed methodology

25

(20.9)

 Interview + Questionnaire

11

(9.6)

 Literature Review + Questionnaire

5

(4.3)

 Open-ended Questionnaire

4

(3.5)

 Literature Review + Discrete Choice Experiments

2

(1.7)

 Literature Review + Delphi Technique

1

(0.9)

 Discussion + Questionnaire

1

(0.9)

 Patient Records Analysis + Questionnaire

1

(0.9)

Qualitative methodology

1

(0.9)

 Discussion

1

(0.9)