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Table 1 Search area classification table

From: Prioritization of research engaged with rare disease stakeholders: a systematic review and thematic analysis

 

Category 1

Category 2

Category 3

Key

word

“rare disease” OR “rare diseases”

in title/abstract

“survey”

in title/abstract

“public” OR “patients” OR “family” OR “health professional”

OR “researchers”

MesH

“rare disease” OR “rare diseases”

in title/abstract

OR “rare diseases” [MeSH]

“survey”

in title/abstract

OR

“health care surveys” [MeSH]

“public” OR “patient” OR “patients” OR “family” OR “families” OR “health professional” OR “health professionals” OR “researcher” OR “researchers” OR “medical doctors” OR “medical doctor” OR “nurses” OR “nurse” OR “caregiver” OR “caregivers” OR “patients” [MeSH] OR “family” [MeSH] OR “health personnel” [MeSH] OR “physicians” [MeSH]

OR “nurses” [MeSH] OR “research personnel” [MeSH] OR “caregivers” [MeSH]