Table 1 Demographic information for respondents and the affected child

Gender

10/15 mother only (67%)

1/15 father only (7%)

4/15 both parents (27%)

4/15 female (27%)

11/15 male (73%)^a

Average age (years)

34.0 ± 10.1 (34–72 years)

9.0 ± 6.4 (1–25 years)

Local origin

14 Caucasian, 3 Asian, 2 preferred not to respond

12 Caucasian, 2 Asian, 1 > 1 race

Ethnicity

1/19 Hispanic (5.2%)

1/15 Hispanic (7%)

Age at diagnosis

n/a

Mean: 6.2 ± 6.2 (birth to 25 years)