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Table 5 Healthcare utilization

From: Leigh syndrome global patient registry: uniting patients and researchers worldwide

 

Na

0

1

2

3

 >  = 4

Nb

Mean (SD); Mode

Median (Q1, Q3); Min, Max

ER visits in past 3 months

93

72 (77.42)

10 (10.75)

5 (5.38)

4 (4.30)

2 (2.15)

20

1.9 (1.1); 1

1.5 (1.0, 2.5); 1, 5

Nights/days inpatient past 3 months

92

68 (73.91)

1 (1.09)

2 (2.17)

2 (2.17)

19 (20.65)

21

12.5 (12.3); 10

10.0 (4.0, 14.0); 1, 45

ER visits in past 12 months

93

52 (55.91)

19 (20.43)

6 (6.45)

4 (4.30)

12 (12.90)

40

4.0 (7.5); 1

1.5 (1.0, 3.5); 1, 45

Nights/days inpatient past 12 months

91

47 (51.65)

13 (14.29)

2 (2.20)

3 (3.30)

26 (28.57)

40

26.8 (33.6); 1

0.0 (1.0, 59.0); 1, 150

  1. aN = number of participants with a valid response regarding a specific type of healthcare utilization
  2. bN = number of participants who had response 1,2,3 to a specific type of healthcare utilization or a response of >  = 4 and provided a specific value