Table 1 XLH Matters 2022 workshop sessions

Workshop 1: The multiple clinical manifestations of XLH

 Part 1

Attendees were split into 13 groups and asked to list all children, adult and overlapping manifestations of XLH

 Part 2

Attendees were asked to identify the XLH manifestations that, as a group, they considered to be well known, commonly missed and challenging in their clinical practice

Workshop 2: Establishing treatment goals for people living with XLH

 Part 1

Attendees were split into 13 groups^†. In their groups, attendees listed the treatment goals for patients and healthcare professionals

 Part 2

Attendees were then asked to identify the treatment goals that, as a group, they considered to be (1) most important and (2) most challenging

Workshop 3: Challenges of transition from paediatric to adult care

 Part 1

Attendees were split into 13 groups and asked to select their top 3 transition challenges, as a group

 Part 2

Co-chairs facilitated a discussion with all attendees and established the top 10 transition challenges

 Part 3

Attendees then voted individually for their highest-ranking transition challenge