Table 1 Population Characteristics of Respondents for the 166 Surveys Included in the Study
Characteristic | No. of Respondents |
|---|---|
Self identification, n (%) | |
Parent of patient | 145 (87%) |
Patient | 11 (7%) |
Other caregiver* | 9 (5%) |
Location: Europe, n | |
Poland | 34 |
Germany | 15 |
Italy | 15 |
Spain | 12 |
Slovenia | 4 |
United Kingdom | 3 |
Austria | 3 |
Location: the Americas, n | |
Dominican Republic | 27 |
United States | 24 |
Brazil | 4 |
Canada | 4 |
Mexico | 3 |
Location: other region, n | |
India | 3 |
Other nation | 1 each: the Netherlands, Switzerland, Cuba, Ukraine, Saudi Arabia, Norway, Egypt, Iran, New Zealand, Jordan, France, Other** |
Age at survey response, y, n (%) | |
< 12 | 30 (18%) |
12–17 | 49 (30%) |
18–29 | 61 (37%) |
≥ 30 | 26 (16%) |