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Fig. 6 | Orphanet Journal of Rare Diseases

Fig. 6

From: Patient and caregiver experiences with pantothenate kinase-associated neurodegeneration (PKAN): results from a patient community survey

Fig. 6

Difficulties related to clinical trial participation according to presenting PKAN phenotype. Respondents were grouped into classic (pink) and atypical (green) PKAN phenotype groups based on their reported age of onset (classic, < 10 years). Respondents who were unable to provide an age of onset were grouped as “not sure” (purple). The number of respondents reporting each category as most difficult was determined from the total number of respondents who answered affirmatively to having participated in a clinical trial. PKAN = pantothenate kinase-associated neurodegeneration

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172