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Table 1 Characteristics of adult patients with β-thalassaemia major and their caregivers

From: Economic burden of adult patients with β-thalassaemia major in mainland China

Categories

Characteristics

Sample

Patient’s demographic

Province, n (%)

 

 Guangdong Province

45(60.0)

 Guangxi Zhuang Autonomous Region

23(30.7)

 Other provinces

7(9.3)

Sex (Male), n (%)

38(50.7)

Age, years, mean (SD)

24.4(5.5)

Ethnicity (Han), n (%)

63(84.0)

Marital status (Unmarried), n (%)

72(96.0)

Employment status (Employed), n (%)

26(34.7)

Disease and therapy information

Comorbidity (Yes), n (%)

50(66.7)

Disease therapy duration, years, mean (SD)

21.3(5.0)

Pretransfusion hemoglobin level (g/L), mean (SD)

76.3(12.3)

Interruption of blood transfusion therapy in recent year (Yes), n (%)

33(44.0)

Interruption of iron chelation therapy in recent year (Yes), n (%)

29(38.7)

Caregiver’s demographic

Identity (Father or mother), n (%)

67(89.3)

Sex (Male), n (%)

19(25.3)

Age, years, mean (SD)

50.6(9.2)

Marital status (Unmarried), n (%)

20(26.7)

Education (Junior high school or lower), n (%)

43(58.7)

Employment status, n (%)

 

 Employed

43(57.3)

 Unemployed

19(25.3)

 Retired

13(17.3)

  1. SD: standard deviation
  2. Other provinces included Fujian Province, Hunan Province, Jiangxi Province, Jiangsu Province, and Xinjiang Uygur Autonomous Region