Table 1 Considerations for potential pilots
From: Together4RD position statement on collaboration between European reference networks and industry
Clarity of goals and expected outcomes | Potential for scaling up to other ERNs |
If there is already an established infrastructure in place | Proposal has patient group support, specifically from the patient group involved in the ERN or ERNs that would participate in the pilot |
Resources available/ committed | Involvement of smaller ERNs |
Single to multiple company pilot | Has potential to satisfy BoMS criteria |