Table 4 Healthcare Resource Use

 At least one hospitalization

N (%)

27 (93.1)

18 (94.7)

45 (93.8)

 Annualized number of hospitalizations

median

(Q1-Q3)

5.4 (1.1–8.0)

1.6 (0.5–3.7)

2.9 (0.6–6.2)

 Annualized cumulative length of stay (d)

median

(Q1-Q3)

21.1 (2.8–89.6)

6.2 (1.0–13.6)

10.9 (1.4 − 24.1)

Emergency room (ER)

 At least one ER visit

N (%)

25 (86.2)

14 (73.7)

39 (81.3)

 Annualized number of ER visits

median

(Q1-Q3)

1.2 (0.3–1.9)

0.4 (0.0–1.0)

0.9 (0.2–1.6)

Intensive care unit (ICU)

 At least one ICU stay

N (%)

< 11

< 11

18 (40.0)

 Annualized cumulative length of stay (d)

median

(Q1-Q3)

4.5 (2.1–6.0)

7.4 (5.0–9.6)

5.9 (2.1–9.6)

Magnetic Resonance Imaging

 At least one brain MRI

N (%)

21 (72.4)

14 (73.7)

35 (72.9)

 Overall Number of MRI

median

(Q1-Q3)

2.0 (0.0–6.0)

3.0 (0.0–11.0)

2.0 (0.0–6.0)

Medical visits*

 At least one medical visit

N (%)

27 (93.1)

17 (89.5)

44 (91.7)

 Annualized number of medical visits

median

(Q1-Q3)

2.9 (0.9–6.3)

3.9 (1.2–6.5)

3.2 (1.0–6.4)

Paramedical care**

 At least one paramedical care

N (%)

25 (86.2)

17 (89.5)

42 (87.5)

 Annualized number of paramedical care

median

(Q1-Q3)

12.7 (1.7–107.9)

5.9 (0.7–11.1)

6.1 (1.3–83.4)

Medical devices

 Medical bed

N (%)

14 (48.3)

< 11

NE

 Wheelchair

N (%)

12 (41.4)

< 11

NE

 Orthesis

N (%)

< 11

< 11

NE

Medical transportations

 At least one medical transport

N (%)

19 (65.5)

< 11

NE

 Annualized number of medical transport

median

(Q1-Q3)

1.1 (0.0–11.2)

0.0 (0.0–0.5)

0.3 (0.0–5.1)