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Table 3 Themes and subthemes of barriers in patients with haemophilia A

From: Barriers to prophylactic treatment among patients with haemophilia A in Shandong Province, China: a qualitative study

Themes

Subthemes

Suboptimal primary health care

A) Lack of health services for early diagnosis

B) Inadequate supportive services for prophylaxis treatment in primary care

C) Difficult in obtain FVIII concentrate close to home

D) Lack of a clarified role of primary care nurses as an acceptable care provider for infusion therapy

Inadequate financial support

E) Financial concerns associated with prophylactic treatment

F) Financial wariness surrounding newly developed treatment techniques

A lack of patient-centred care

G) Insufficient information regarding self-infusion and disease management

H) Safety concerns associated with different product types

I) Poor user experience of domestic-produced infusion devices