Table 1 The AAAQ Framework with Refined Definitions
Domains | Definitions |
|---|---|
Availability | From diagnosis to treatment, ensure functioning health services (e.g., clinical testing and treatment options) in sufficient quantity at all levels for patients with haemophilia A |
Accessibility | Health facilities, services (e.g., infusion therapy), and medications (e.g., FVIII concentrate) must be accessible to all patients with haemophilia A. (1) Reach the most vulnerable patients (2) Physical accessibility: within safe physical reach (3) Financial accessibility: affordable to all (4) Sufficient educational information (e.g., disease recognition and management, self-infusion) |
Acceptability | Health services (e.g., infusion therapy) need to be provided in a culturally sensitive way. Treatment options (e.g., episodic or prophylaxis) must be explained in an understandable way. |
Quality | Medications (e.g., plasma-derived or recombinant FVIII) and techniques (e.g., infusion devices) are scientifically and medically appropriate and of good quality. |