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Table 2 Sample characteristics

From: Living with a rare disease - experiences and needs in pediatric patients and their parents

sample characteristics

 

parents

 

children

  

n

 

%

 

n

 

%

female

 

63

 

85.1

 

6

 

40

male

 

11

 

14.9

 

9

 

60

age (in years)

 

37.5

 

-

 

13.6

 

-

co-habitant parent

 

60

 

81

 

-

 

-

single parent

 

14

 

19

 

-

 

-

number of children

 

1.85

 

-

 

-

 

-

time of initial diagnosis (age of the child)

pregnancy

 

8

 

10.8

 

-

 

-

< 1 year

 

30

 

40.5

 

7

 

46.7

≥ 1 year

 

36

 

48.7

 

8

 

533

duration of the interview (in minutes)

 

19.95

   

20.6

 

-

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172