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Table 2 Mean LIS itch score by RDEB subtype at index review (n = 50). Index review is the first review for each participant with complete information on for all 6 LIS subscales. Results are presented as mean (sd)

From: Itch in recessive dystrophic epidermolysis bullosa: findings of PEBLES, a prospective register study

 

RDEB subtype

Itch score

Overall

S

I

Inv

Pru

n

50

20

18

9

3

Frequency

66 (32)

78 (23)

51 (35)

58 (38)

92 (14)

Duration

28 (40)

19 (37)

29 (41)

29 (40)

78 (38)

Severity

60 (24)

66 (18)

50 (22)

51 (33)

86 (10)

Distress

49 (29)

57 (27)

35 (28)

48 (31)

73 (5)

Consequences

32 (20)

35 (20)

21 (13)

34 (23)

60 (11)

Surface area

17 (15)

16 (13)

14 (17)

17 (16)

28 (12)