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Table 1 Patient participant characteristics (n = 12)

From: “Because it is a rare disease…it needs to be brought to attention that there are things out of the norm”: a qualitative study of patient and physician experiences of Wilson disease diagnosis and management in the US

Age, years

 

Average (range)

40 (19–72)

Age at diagnosis (years)

 

Average (range)

22.75 (6–48)

Gender, n (%)

 

Men

5 (42)

Women

7(58)

Ethnicity

 

White

10 (83)

Hispanic

1(8)

Native American

1(8)

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172