Table 1 Overview of interview questions relevant for the objectives
Topic | Question |
|---|---|
Introduction | Do you have any questions before we start the interview? |
Sociodemographic data and basic characteristics of the patient organization | |
Negative impact of COVID-19 on the people represented by the patient organization | Which consequences and changes due to the COVID-19 pandemic did you notice in your RD community since the beginning of the pandemic? (in health care, in daily life) What were/are the key stressors you observed or noticed? |
Resources and Needs | What positive aspects did you notice? What aspects have helped or would have helped people with RD to reduce or manage stressors? What kind of support was lacking? How would the best possible care and support would have looked like? |
Closing | Is there anything else you were not able to report in the context of the previous questions which you consider important to understand the situation of the people represented by the patient organization? |