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Table 1 Respondents’ characteristics

From: General public’s understanding of rare diseases and their opinions on medical resource allocation in Japan: a cross-sectional study

N = 11,019

n

%

Age

20–29

1915

17.4

30–39

2009

18.2

40–49

2568

23.3

50–59

2430

22.1

60–69

2097

19.0

Average age

45.3

  

Sex

Male

5746

52.1

Female

5236

47.5

Others

37

0.3

Occupation

Full-time employee

4905

44.5

Part-time employee

1977

17.9

Independent business owner

714

6.5

Student, housekeeper, unemployment

3423

31.1

Education

Junior high school

212

1.9

Senior high school

3438

31.2

Technical school

1071

9.7

College

1352

12.3

University

4085

37.1

Graduate school

458

4.2

N/A

403

3.7

Marital status

Married

5804

52.7

Not married

5215

47.3

Children whom I live with

No

7628

69.2

Yes

3391

30.8

Household income

< $200,000,000

1066

9.7

$200,000,000–$299,999,999

1003

9.1

$300,000,000–$399,999,999

1097

10.0

$400,000,000–$499,999,999

1090

9.9

$500,000,000–$599,999,999

984

8.9

$600,000,000–$699,999,999

639

5.8

$700,000,000–$799,999,999

604

5.5

$800,000,000–$899,999,999

386

3.5

$900,000,000–$999,999,999

416

3.8

≥ $1,000,000,000

774

7.0

I do not know/I do not want to answer

2960

26.9

Current health condition

Going to the hospital now

3979

36.1

Went to the hospital during the past 3 months

1011

9.2

Went to the hospital during the past 6 months

488

4.4

Went to the hospital last year

650

5.9

Did not go to the hospital last year

4891

44.4

I and/or the people around me experienced a rare disease

Yes

1087

9.9

No

9075

82.4

I do not want to answer

857

7.8

Source of information on healthcare and medical science

Television

8271

75.1

Internet other than SNS

6713

60.9

Newspapers

2997

27.2

Word-of-mouth communication

2588

23.5

SNS (e.g., Facebook, Twitter, Instagram, TikTok)

2059

18.7

Magazines

1422

12.9

Radio

1159

10.5

Newsletter, free news magazine

527

4.8

Scientific articles

325

2.9

N/A

999

9.1

Interests in topics of healthcare and medical science

I am interested in the topics

1853

16.8

I tend to be interested in the topics

6712

60.9

I tend not to be interested in the topics

1992

18.1

I am not interested in the topics

462

4.2

Assessment of the progress of healthcare and medical science

There are more positives

2127

19.3

Somewhere more positives

4784

43.4

Both are the same

3606

32.7

Somewhere more negatives

341

3.1

There are more negatives

161

1.5

  1. SNS social networking services