Table 1 Family demographics
Participants (n, %) | |
 Total cohort of parents | 21 (100) |
 Male | 7 (33.3) |
 Female | 14 (66.7) |
Mean age parents (y, range) | |
 Overall | 38.2 (28–50) |
 Male | 40.0 (34–50) |
 Female | 37.4 (28–42) |
Nationality (n, %) | |
 Dutch | 18 (85.7) |
 Iraqi | 2 (9.5) |
 Moroccan | 1 (4.8) |
Highest level of education parents (n, %) | |
 Secondary school | 2 (9.5) |
 Intermediate vocational education | 4 (19.1) |
 Higher vocational education | 11 (52.3) |
 University level | 4 (19.1) |
Children with Medical Complexity (CMC) (n, %) | |
 Total cohort | 14 (100) |
 Male | 7 (50) |
 Female | 7 (50) |
Mean age CMC (y, range) | |
 Overall | 4.2 (6m–10y) |
 Male | 4.4 (1y–7y) |
 Female | 3.9 (6m–10y) |
Number of siblings (n, %) | |
 0 | 6 (42.9) |
 1 | 2 (14.3) |
 2 | 4 (28.6) |
 3 | 1 (7.1) |
 4 | 1 (7.1) |
H2H transition mode (n, %) | |
 From hospital to home | 9 (64.3) |
 Via transitional care unit | 4 (28.6) |
 Via nursing home | 1 (7.1) |
Home care (n, %) | |
 Yes | 10 (71.4) |
 No | 4 (28.6) |