Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study

Table 1 Final coding system

Main codes	Sub-codes
Disease and coordination management of the caregivers
General conditions of care
Expertise and skills	Expertise and skills of HCP
	Expertise and skills of caregivers
Coordination structure	Existing coordination mechanisms
	Perceived coordination needs
Information exchange	Information exchange between caregivers and HCP
	Information exchange between caregivers
	(Perceived) information exchange between HCP
Role distribution in care coordination	Role of pediatrician
	Role of neuromuscular center
	Role of local care providers
	Role of SPC/early intervention center
	Role of caregivers
Quality of relationship

ISSN: 1750-1172