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Table 1 Caregiver demographics

From: Developing Angelman syndrome-specific clinician-reported and caregiver-reported measures to support holistic, patient-centered drug development

Demographic variables

Total (N = 15)

Caregiver’s age, years

Mean (SD)

38.6 (5.4)

Median

39.0

Range

27.0–50.0

Caregiver’s sex, n (%)

Female

14 (93.3)

Male

1 (6.7)

Caregiver’s ethnicity, n (%)

Hispanic/Latino

1 (6.7)

Not Hispanic/Latino

14 (93.3)

Caregiver’s race, n (%)

White/Caucasian

13 (86.7)

Black/African American

1 (6.7)

Asian/Asian American

1 (6.7)

Caregiver’s highest level of education, n (%)

Some college or certification program

4 (26.7)

College, technical college, or university degree (2- or 4-year)

7 (46.7)

Graduate degree (MS, PhD, MD, etc.)

4 (26.7)

Caregiver’s work status, n (%)

Employed/self-employed full time (≥ 40 h per week)

7 (46.7)

Employed/self-employed part time (< 40 h per week)

2 (13.3)

Homemaker

5 (33.3)

Unemployed

1 (6.7)

  1. MD Doctor of Medicine; MS Masters of Science; PhD Doctor of Philosophy; SD standard deviation