Table 1 Patient’s characteristics
From: Transition for adolescents with a rare disease: results of a nationwide German project
Condition | Haematologic/primary immune-deficiencies | Endocrine | Inflammatory | Metabolic | Nephrological | Other rare disease | Total |
|---|---|---|---|---|---|---|---|
N | 6 | 147 | 58 | 15 | 52 | 14 | 292 |
Sex | |||||||
Male | 1 (16.6%) | 78 (53.1%) | 16 (27.6%) | 6 (40.0%) | 37 (71.2%) | 8 (57.1%) | 146 (50%) |
Female | 5 (83.3%) | 69 (46.9%) | 42 (72.4%) | 9 (60.0%) | 15 (28.8%) | 6 (42.9%) | 146 (50%) |
Age (years) at decision for transition | |||||||
Mean | 17.3 | 18.1 | 17.2 | 19.5 | 18.2 | 18.4 | 18.5 |
SD | 1.4 | 2.0 | 1.3 | 4.4 | 1.8 | 3.4 | 2.1 |
Median | 17.5 | 18.0 | 17.0 | 19.5 | 18.0 | 18.0 | 17.9 |
Min | 15 | 15 | 16 | 15 | 16 | 16 | 15 |
Max | 19 | 24 | 23 | 31 | 23 | 29 | 31 |