Fig. 5
From: Caregiver burden in Bardet-Biedl syndrome: findings from the CARE-BBS study
Revised IOFS by Country. BBS: Bardet-Biedl Syndrome; IOFS: Impact on Family Scale. 1. Higher scores indicate that BBS has a greater impact on the family. The bottom bars (dark colors) correspond to the average Familial/Social Impact scores (Range: 0–36) and the top bars (light colors) correspond to the average Personal Strain scores (Range: 0–24). The bolded number at the top of each stacked bar corresponds to the average Total Impact scores (Range: 0–60). 2. Higher scores indicate that BBS has a greater impact on the family