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Table 6 User behavior from 23.09.2021 to 23.09.2022

From: Co-constructing effective collective intelligence networks in rare diseases: a mixed method approach to identify the parameters that matter for patients, professionals and policy-makers, piloted in Cyprus

Activity

Patients/ Families

Healthcare professionals

Registrations

251

210

Anonymity

Fully Anonymous 50

Semi Anonymous 139

Not Anonymous 62

 N/A

Profile completion

126

106

Joined communities

240

151

Number of posts

84

24

Number of resources

9

1

Number of replies to posts

122

5

Number of patient stories

25

N/A

Number of replies to patient stories

7

N/A

Medical Teams (creation + colleagues)

N/A

23

Medical teams (request meeting)

N/A

0